Posts Tagged ‘disability advocacy’

It’s Thanksgiving Day here in the States, a day to be thankful for what we’re given (as well as gloss over some of the darker aspects of our nation’s early history). And as cliche and cringe-inducing as it is, I thought I’d take a moment to post about what I’m thankful for this year. Why? Eh, it just felt like something I ought to write about.

And with that established, what do I have to be thankful for? Well, plenty. 2018 has been a fucking good year for me. Yes, you read that right. 2018 has been a fucking good year for me. On a number of levels and in several areas of my life, it’s been good for me:

Writing. Obviously, things have been great on the writing front. Back in March, my novel Rose was accepted by Castrum Press for publication, which is a pretty big deal. Not only that, they pointed out the issues with the novel that gave me insight in how to fix it in rewrites. Right now Castrum’s probably looking over the manuscript, figuring out what else needs to be improved before we publish the book.

Not only that, but my short story “Car Chasers” was accepted for publication in the anthology The Binge-Watching Cure II from Claren Books, which will likely be out sometime in early 2019; I ended up writing another novel, River of Wrath, and I still get a kick out of all the craziness that came with writing it;* I’ve managed to increase the input so that I get a minimum of thousand words out rather than just a minimum two hundred and fifty; and I passed a thousand followers on my blog.

This is going very well for me lately.

Plus I’ve written a whole bunch of new stories and edited a few more over the course of the year. Hopefully some of them will get published someday. I’m really proud of them, an I would love for you to read some of them.

Work. My day job can be pretty demanding and stressful, but it’s very rewarding. In case you weren’t aware, I work for a supply organization in a sort-of HR position that involves helping employees with disabilities get accommodations so they can continue working, as well as helping to run programs that emphasize the different ethnic/specialty groups in the organization. A lot of people my age have trouble finding jobs, so I’m incredibly thankful that my work helps so many people and that I’m paid enough so I can keep afloat and put something away in savings. Hell, I got a really nice raise earlier this year, which has been really helpful for reasons I’ll get into.

And while I’m working there, I think I’ll continue to soar in the position. Last month, I led the effort to put on a program for National Disability Employment Awareness Month that was very well-received, and I’m being trained on a whole bunch of new tasks. Who knows? Perhaps I’ll soon earn the privilege to work from home once a week by this time next year, among other things.

Life. Ooh boy, life’s been good lately. My back issues have improved immensely this year, to the point that I don’t feel pain every day any more, and when I do it’s usually a dull ache. And of course, you may have heard that I recently got my driver’s license and my own car, which has been a Godsend in my life. Yeah, it’s another bill or two, but thankfully I can afford it. That, and a whole bunch of other things that I won’t get into (they’re a little too personal) have made my life frankly wonderful.

My car, the Unholy Roller. So glad to have a set of wheels of my own.

The people in my life. Including you. While I like living on my own and having my own space, I’m lucky to have a good group of people in my life. Friends to hang out with, family I can go to for advice and hugs, coworkers who help me out when I have a question and even make sure I get home okay when I get sick at work (that happened just the other day). And I’m thankful for all the people who follow me and my work and even read my stories when they’re published. Having so many people encouraging me every day and showing an interest in what I write is a big deal for me. So thank you, Followers of Fear. I’m thankful for you being part of my journey through life.

 

That’s all for now, My Followers of Fear. I’m sure I’ll have another post out before too long, but for now I’ve got to go get some cooking done for tonight. Whether or not you’re celebrating, Happy Thanksgiving my Followers of Fear, and pleasant nightmares.

*Not kidding, I never thought it’d be longer than twenty or thirty thousand words, but it ended up being sixty thousand! But the real crazy part is that I started that novel on October 29th, 2017 and finished it a year and a day later on October 30th, 2018. The novel takes place on October 30th and 31st, 1961. And I finished it at 3 AM, the Devil’s Hour, which is fitting as it’s a novel partially inspired by Dante’s Inferno. You can’t make this shit up!

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So that lovely and occasionally terrifying thing known as the Internet has informed me that April is Autism Awareness Month, and as someone who is on the spectrum, I felt I should contribute something.

The only question is, what should I contribute? I haven’t had any experiences like when I was asked to give advice on how to help someone’s autistic relative; I haven’t been prompted to record a video or anything like the one below, detailing a specific issue involving disability (by the way, that video recently passed the one-year anniversary of when it was uploaded, and also passed five-hundred views soon afterwards. I find that pretty cool); I haven’t had any revelations about my relationship with my autism; and no one’s asked me point-blank if I’m autistic recently. What’s there to talk about? What can I say that not only needs to be said, but I feel strongly speaking my mind about?

 

Well, I guess one subject I can broach is how autism affects adults, especially in terms of job searching and job security.

A lot of people associate autism with children. When they associate it with adults, I think the popular image is low-functioning adults who are being taken care of by their parents or at facilities. And while there is a segment of the adult autistic population that do need that sort of care, the popular image ignores the segment of the population who don’t require full-time care from facilities or parents, those who can and seek to live independently. And they face their own unique challenges and issues.

Now, I”m just going off my own experience and the experiences of others who have or are related to people with ASD, but the fact that we’re either experiencing or hearing about this says something.

I’ve mentioned before how, between October 2015 and about March or April 2016, I was on the worst job search I’ve ever experienced. Every day I would send out resumes and applications, only to either not hear anything back or to be passed over after being interviewed. One reason this may have happened is because I was open to my potential employers about the fact that I have ASD, and that it sometimes made social situations awkward. I have no proof, but it’s possible that knowing my diagnosis may have scared them off. People have this association with people with disabilities in general that we’re unable to do anything. And even if we’re skilled at something (sciences, writing, mathematics, painting, music, whatever), our needs are too much for them to handle as employers.

The reality, I assure you, is much different. At work, part of my job is being a disability advocate, and I can attest that people with disabilities not only do things, they do them very well. Not only that, but employers who treat disabled employees well find that not only are these employees hard-working and loyal, but several times less likely to turn over than the general population. Not only that, but accommodations for their disability usually aren’t burdensome: a quiet or obstacle-free workspace, or flexible schedules, or leave for medical appointments. And when it does cost money for accommodations, it’s usually not expensive. Seriously, I help handle accommodations at work. I rarely see the cost get anywhere near five-hundred dollars.  My own accommodations cost the organization nothing: I just listen to my iPod or audio books while I work (I pay for any new music or audio books) and I have a chair designed to ease my back pain (we already had the chair to begin with, so it didn’t cost any money to give it to me).

But still, a lot of employers are wary of employing the disabled, especially folks with ASD. They have this idea of a Rain Man-type character, someone who may excel at one very special skill, but needs all sorts of help in every other area of life and can’t do anything but certain tasks. For many autistic adults, this simply isn’t the case. Each of us may present our diagnosis differently, but it doesn’t affect each and every one of us that badly, and we are suited for a variety of tasks.

I’m lucky that I was able to get a job in an office where everyone is kind and gets that I’m not always the savviest person socially, in an organization that emphasizes disability hiring, accommodation, and inclusion. But not many people like me are that lucky. They have trouble finding jobs because employers see their disabilities as a huge barrier. I’ve heard from friends who’ve had this experience, as well as from others. And not just with jobs: I’ve heard from people who have told me that they or their relatives had had trouble finding services that help them cope with their ASD once they reach adulthood or when they’re diagnosed in adulthood. There’s plenty of help for minors, but for adults, it can be a challenge.

So this Autism Awareness Month, I’m writing a post urging people not only to support autism awareness, research, and therapy, but also to rethink how we approach adults with autism (and disabilities in general). The majority of us aren’t helpless individuals. We’re hardworking and want to be part of society. You just have to give us the opportunity, whether that be funding for programs that offer counseling, education, and job training to autistic adults, or actually giving a job to someone with autism. Quite possibly, you’ll be amazed at what you receive in return.

Thank you for reading, and have a good month of April.